Rare Challenges

rarediseases.org › for-patients-and-families › information-resources

List of Rare Disease Information - NORD (National ...

Enhancements to NORD's Rare Disease Database and website were made possible through a grant from the Anthem Foundation, the charitable arm of Anthem, ...

‎Aarskog Syndrome · ‎Achalasia · ‎Abetalipoproteinemia · ‎Acoustic Neuroma

www.fda.gov › drugs › drug-information-consumers › orphan-produ...

Orphan Products: Hope for People With Rare Diseases | FDA

Mar 1, 2018 - Though little is known about Jumping Frenchmen of Maine, the disorder and more than 6,000 other rare or "orphan" diseases are receiving ...

info.rarediseases.nih.gov › diseases › pages › faqs-about-rare-diseases

FAQs About Rare Diseases - Genetic and Rare Diseases - NIH

Nov 30, 2017 - What is a rare disease? In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. This definition was ...

nlm.ncbi.www.nih.gov › pmc › articles › PMC1885017

Rare diseases and orphan drugs - NCBI - NIH

by JK Aronson - ‎2006 - ‎Cited by 132 - ‎Related articles

The word orphan comes from the Greek word orphanos, a child who has lost one parent or both, or an adult who has lost a child. It goes back to the putative ...

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